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Parkinsons/Q&A/Benefits Claim Uk Parkinsons

What benefits can I claim if I have Parkinson's in the UK?

3 Expert views
5 Resources

The basics

If you have Parkinson's Disease in the UK, there are several benefits and financial supports you may be eligible to claim. These benefits are designed to help manage the additional costs and challenges associated with living with Parkinson's.

Available Benefits

Personal Independence Payment (PIP)

PIP is available for individuals aged 16 to State Pension age who need help with personal care or mobility due to a long-term health condition or disability. It is designed to cover the extra costs of living with a disability.

Attendance Allowance

This benefit is for those over State Pension age who require help with personal care due to a disability. It helps cover the costs of care and support.

Employment and Support Allowance (ESA)

ESA is for individuals whose ability to work is limited by illness or disability. It provides financial support if you are unable to work and personalized help to support you in work if you are able to.

Universal Credit

Universal Credit is a means-tested benefit for those who are out of work or on a low income. It helps with living costs and is gradually replacing several older benefits.

Carer's Allowance

If you spend at least 35 hours a week caring for someone with Parkinson's, you may be eligible for Carer's Allowance. This benefit provides financial support to those who care for someone with substantial caring needs.

Housing Benefit

For those on a low income, Housing Benefit can help with paying rent. It is being replaced by Universal Credit in many areas.

Additional Support and Resources

  • NHS Continuing Healthcare: If your care needs are primarily health-related, you might be eligible for NHS Continuing Healthcare, which covers the cost of care.
  • Local Support Services: Organizations like Parkinson's UK offer support and advice. They have a helpline (0808 800 0303) and provide resources to help manage finances and access benefits.
  • Benefits Calculator: Use tools like the Turn2us benefits calculator to check what benefits you might be entitled to.

It's important to explore these options and see which benefits you qualify for, as they can significantly ease the financial burden of living with Parkinson's Disease. For more detailed guidance, you can visit the Parkinson's UK website or contact their helpline for personalized advice.


What the experts say

3 Expert views

In the UK, individuals with Parkinson's Disease may be eligible for several types of financial support and benefits to help manage the condition's impact on daily life. Here are some key benefits that might be available:

  • Personal Independence Payment (PIP): This benefit is designed to help with the extra costs of living with a long-term health condition or disability. It is available to individuals aged 16 to 64 and is not means-tested, meaning it is not affected by income or savings.

  • Employment and Support Allowance (ESA): ESA provides financial support to those unable to work due to illness or disability. It also offers personalized help to support individuals in work if they are able to.

  • Attendance Allowance: This is for people over State Pension age who need help with personal care due to a physical or mental disability.

  • Disability Living Allowance (DLA) for Children: If you have a child with Parkinson's, they may be eligible for DLA, which helps with the extra costs of looking after a child with a disability.

  • Carer's Allowance: If you are caring for someone with Parkinson's, you might be eligible for Carer's Allowance, which provides financial support to those who spend at least 35 hours a week caring for someone.

It's important to note that the application process for these benefits can be complex, and many initial applications are rejected. Consulting with a disability attorney or a benefits advisor can be beneficial to navigate the process effectively12. Additionally, while the UK offers subsidized prescriptions, Parkinson's is not currently on the list of conditions that receive free prescriptions, which can be a financial burden for many1.

Video

Matt Verguson discusses the challenges of accessing services for Parkinson's patients in the UK, highlighting the lack of free prescriptions for Parkinson's medications. He mentions the need for a multidisciplinary service model that includes financial advice, which is currently not widely available.

February 2024 • TogetherForSharon®

Video

Jill Ater shares her experience with applying for disability benefits after being diagnosed with Parkinson's. She emphasizes the importance of consulting with a disability attorney to navigate the application process, as many initial applications are rejected. She also highlights the benefit of receiving Medicare through disability.

August 2018 • Davis Phinney Foundation for Parkinson's


Related resources

5 Resources
Discusses living with Parkinson's, including care options and benefits in the UK.

Discusses living with Parkinson's, including care options and benefits in the UK.

Podot

Provides information on symptoms, treatments, and financial support for Parkinson's in the UK.

Provides information on symptoms, treatments, and financial support for Parkinson's in the UK.

November 2022 • NHS

Parkinson's UK offers local support groups for patients and carers across the UK.

Parkinson's UK

Information on financial support, including grants and loans, for Parkinson's patients in the UK.

Parkinson's UK

Details on benefits available for Parkinson's patients and carers in the UK.

Parkinson's UK

Was this helpful?

This is not healthcare advice or a recommendation. This tool is in beta and currently experimental. It is designed to help you find the most recent and helpful sources, from different voices, for you to take to consider with your healthcare team.

We appreciate any feedback as we aim to help speed up breakthroughs for all conditions.


Related questions
What financial support is available for Parkinson's patients in the UK?
How do I apply for disability benefits with Parkinson's in the UK?
Are there any special grants for Parkinson's patients in the UK?
What is the process for claiming benefits with Parkinson's in the UK?
Can caregivers of Parkinson's patients claim benefits in the UK?

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